Showing posts with label chronic pain. Show all posts
Showing posts with label chronic pain. Show all posts

Tuesday, May 8, 2012

Hokey Pokey

I realize that the Navy life involves the Sea. But I don't like it when it involves unnecessary torture. 


Right now, his ship is out on a Fleet Week Tour. Everyone who has ever been associated with Navy life knows what that means.


So he is out now, scheduled to be gone for a several weeks. Well after stop #1 was complete, his ship has to come by VA to get to their next stop. They have plenty of time, so the ship puts out a vote to see if they pull in for the night, or not. 
We all know they are not really going to pull in. The fuel costs are astronomical for a pull in and pull out. Why waste that money when the ship needs other things. 
I got that part, but why get everyone's hopes up that they may get to go home and sleep in their bed for one night?
To me that is just mean. 


Due to my health issues, I have a lot going on right now, and it is just not a good time for him to be away from me. So the fact that the Navy was teasing his whole ship that they may get to go home for a day was just MEAN!  

Tuesday, March 6, 2012

A Medicated Life ....

I wish I could say that my medicated life was full of narcotics and happy pills and that all my medications were wonderful. However, that is not the case. 
Since starting to see my Rheumatologist, he has been on the "wait and see" approach. I guess he wants my blood work to show astronomical levels, or he wants my body to show astronomical damage. Since I am in the beginning, it is not going to be that way. 
So after months of going to the Rheumatologist over and over, and never getting a prescription for anything, he has finally started me on the intro medications for Rheumatoid Arthritis. I'm on Azulfidine. I had never heard of it. But it is not as strong as the others. The medication given for Rheumatoid Arthritis are basically like chemo drugs and they are very very dangerous and come with an enormous amount of side affects. 
I'm probably just as afraid of the side affects as I am the disease. 

Sunday, March 4, 2012

The Pajama Wife

Admit it, We've all seen her. Sometimes we all wish we could be her. The constantly in pajamas wife. Mostly we say she is a military wife, but sometimes she is not. 
She is that lady that takes her kids to the bus stop in pajamas, she shops at the store in pajamas. You aren't sure when she last got dressed, put on makeup, or brushed her hair. She is a lady of non-stop leisure. 


Dealing with 2 chronic pain diseases that will never go away, I often wish I could be her. That wife who has no where to be at any given time. I would love to have that. I would love to not have to worry about being anywhere, getting dressed at any special time, or having any responsibilities. Somehow, they make ends meet off of hubby's paycheck and it all works. Even though she has all of these free hours to get involved with her kids after school activities, or volunteer, she doesn't feel the need to. Her pajamas are way too important. 


I want my pajamas to be important too. 


However, I realize that my pajamas would never replace my current salary, so unless I can figure out a way to do that, I am stuck getting dressed. 


Budget ... People say. Live off a budget. You can live on one salary.
Seriously? 
OK, so for me to live the pajama life, here are some of the things I would have to give up. 
Our season passes to Busch Gardens and Sea World. We won't ever be going there with only one Salary. Eating out ever again. We would be on PB&J for the rest of our lives. Movies, concerts, sporting events, conventions, travel, casinos, bowling, shopping, pretty much anything that is not inside the house or free. 
So in order for me to live in pajamas, I would have to give up everything that I do to generate photos to scrapbook. So basically the pajama life would equal no scrapbooking. 
Well that does it. Forget it about me ever being the pajama wife. 
I don't care that I have to get up when I am hurting, I am never ever giving up scrapbooking. 
Its become more of an obsession with me and less of just a hobby.
When I'm not scrapbooking, I want to be taking pictures of something to scrapbook. When I am not working on my book or taking pictures, I want to be planning my next event. 


Maybe I will just start doing all of my scrapbooking and all of my event planning in pajamas and I will feel like more of a lady of leisure.