I wish I could say that my medicated life was full of narcotics and happy pills and that all my medications were wonderful. However, that is not the case.
Since starting to see my Rheumatologist, he has been on the "wait and see" approach. I guess he wants my blood work to show astronomical levels, or he wants my body to show astronomical damage. Since I am in the beginning, it is not going to be that way.
So after months of going to the Rheumatologist over and over, and never getting a prescription for anything, he has finally started me on the intro medications for Rheumatoid Arthritis. I'm on Azulfidine. I had never heard of it. But it is not as strong as the others. The medication given for Rheumatoid Arthritis are basically like chemo drugs and they are very very dangerous and come with an enormous amount of side affects.
I'm probably just as afraid of the side affects as I am the disease.
Showing posts with label RA. Show all posts
Showing posts with label RA. Show all posts
Tuesday, March 6, 2012
Thursday, March 1, 2012
Mutual Respect
Why is it so difficult for adults to understand the concept of mutual respect?
It is simple really, I don't let my dog poop in your yard, so don't let your dog poop in mine.
But for some reason this concept of mutual respect is completely lost on adults.
Children understand that if you want to play with another child's toys you must let that other child play with yours. The road runs two ways.
Since I have been diagnosed with RA and Lupus, I have found that suddenly, everyone is a fucking doctor. Everyone knows best. Everyone knows everything.
People simply do not realize how annoying this is. I am the one suffering, and yet, I have to suffer more, by listening to a bunch of non-medical people flap their traps about this and that and other things.
The most annoying part is that almost everyone who offers this unsolicited medical advice, I would love to give them some advice on their life. Stop being a bitch, learn to not be so trusting, grow the fuck up.
However, I keep my mouth shut and just nod and say ok. I pretend that I care about what they are saying and it will be right next on my list of everything else everyone else has told me to try.
I don't bother other people. I don't comment like crazy on people's facebook, I don't tag people in posts, I don't do anything to other people that I consider to be annoying in the facebook world. However, people still feel the need to comment on my stuff in a mean way, tag me in posts that will constantly be commented on, so my phone continually notifies me.
I guess it is all my fault because I tend to expect people to treat me the way that I treat them. I don't want you all in my business, so don't get all in my business. I don't run around telling you how to change your life, so don't run around telling me how to change mine. I don't try to convince everyone they need to scrapbook or watch Criminal Minds, so don't try to convince me to do whatever it is that you do for your lifestyle and for fun.
So in summary, unless I ask you what you think I should do about my Lupus or RA, Don't fucking tell me what to do!
It is simple really, I don't let my dog poop in your yard, so don't let your dog poop in mine.
But for some reason this concept of mutual respect is completely lost on adults.
Children understand that if you want to play with another child's toys you must let that other child play with yours. The road runs two ways.
Since I have been diagnosed with RA and Lupus, I have found that suddenly, everyone is a fucking doctor. Everyone knows best. Everyone knows everything.
People simply do not realize how annoying this is. I am the one suffering, and yet, I have to suffer more, by listening to a bunch of non-medical people flap their traps about this and that and other things.
The most annoying part is that almost everyone who offers this unsolicited medical advice, I would love to give them some advice on their life. Stop being a bitch, learn to not be so trusting, grow the fuck up.
However, I keep my mouth shut and just nod and say ok. I pretend that I care about what they are saying and it will be right next on my list of everything else everyone else has told me to try.
I don't bother other people. I don't comment like crazy on people's facebook, I don't tag people in posts, I don't do anything to other people that I consider to be annoying in the facebook world. However, people still feel the need to comment on my stuff in a mean way, tag me in posts that will constantly be commented on, so my phone continually notifies me.
I guess it is all my fault because I tend to expect people to treat me the way that I treat them. I don't want you all in my business, so don't get all in my business. I don't run around telling you how to change your life, so don't run around telling me how to change mine. I don't try to convince everyone they need to scrapbook or watch Criminal Minds, so don't try to convince me to do whatever it is that you do for your lifestyle and for fun.
So in summary, unless I ask you what you think I should do about my Lupus or RA, Don't fucking tell me what to do!
Saturday, June 11, 2011
A Life Of Pain ....
Every morning of my life starts the same way .... In Pain. My RA sort of "locks up" and causes my joints to swell and ache. It seems to be worse in the morning when I have done something physical the day before. If I go to a theme park, or ride my bike, or something as simple as walk the dog I wake up worse than if I had a day of nothing.
I've learned a few little things that help me like taking breaks. Something as simple as housecleaning, I have to take breaks. I run the vacuum, take a break, do the dishes, take a break, fold the laundry, take a break. It takes me forever to get anything done, but I have to do it this way.
"You don't look sick" or "You brought this on yourselfy with your weight"
If I had a dollar every time I heard one of those, I would be rich.
RA is not caused by weight, diet, or lifestyle. Skinny people get it, kids get it, old people get it, marathon runners get it.
Rheumatoid Arthritis is an AutoImmune Disease.
My body is attacking itself. 30% of people with RA end up with another autoimmune disease such as FibroMyalgia or Lupus. 10% of people with RA end up with all 3, RA, Fibro and Lupus.
Why would I ask for this?
No, I don't think it is cool to have a disease. No, I did not create it to have an excuse.
I simply went to the doctor to find out why I was in such constant pain and why my feet and hands swell and hurt every morning.
I am so tired of people acting like I have created this, or I just want an excuse, or I am just a drama queen.
My body aches and hurts all day everyday. I did not ask for this, I do not want this.
I am really tired of people constantly "preaching" to me that I should change my diet and increase my physical activity and my fake disease would go away and I would feel better.
Trust me, If the cure for RA was to eat nothing but celery and run 5 miles a day, I WOULD DO IT!
Running is only going to make me worse, and although I like celery, it isn't the cure for RA.
So please, Have a little respect for people who have something they cannot control.
You live your life your way, and I will live mine.
I've learned a few little things that help me like taking breaks. Something as simple as housecleaning, I have to take breaks. I run the vacuum, take a break, do the dishes, take a break, fold the laundry, take a break. It takes me forever to get anything done, but I have to do it this way.
"You don't look sick" or "You brought this on yourselfy with your weight"
If I had a dollar every time I heard one of those, I would be rich.
RA is not caused by weight, diet, or lifestyle. Skinny people get it, kids get it, old people get it, marathon runners get it.
Rheumatoid Arthritis is an AutoImmune Disease.
My body is attacking itself. 30% of people with RA end up with another autoimmune disease such as FibroMyalgia or Lupus. 10% of people with RA end up with all 3, RA, Fibro and Lupus.
Why would I ask for this?
No, I don't think it is cool to have a disease. No, I did not create it to have an excuse.
I simply went to the doctor to find out why I was in such constant pain and why my feet and hands swell and hurt every morning.
I am so tired of people acting like I have created this, or I just want an excuse, or I am just a drama queen.
My body aches and hurts all day everyday. I did not ask for this, I do not want this.
I am really tired of people constantly "preaching" to me that I should change my diet and increase my physical activity and my fake disease would go away and I would feel better.
Trust me, If the cure for RA was to eat nothing but celery and run 5 miles a day, I WOULD DO IT!
Running is only going to make me worse, and although I like celery, it isn't the cure for RA.
So please, Have a little respect for people who have something they cannot control.
You live your life your way, and I will live mine.
Monday, April 25, 2011
A Flare
I was diagnosed with Rhuematoid Arthiritis in 2010. I've had it for awhile apparently, but I always thought I had the standard Osteo Arthritis and I really couldn't do anything about it but take Tylenol.
Today, I am having a flare. When I have a flare, my joints swell and hurt. Sometimes, its pretty much all over, sometimes it is just one or two areas. Today, I am having a localized flare in just my hands and feet. My hands are so swollen that I cannot make a fist today. My fingers are so swollen I cannot wear my ring. It hurts when I try to make a fist.
My ankles are swollen and my toes hurt really bad. For probably about a month now, I haven't been able to bend the big toe on my right foot all the way.
Even when I am not having a flare, I still have pain from RA. Some people do not understand that I am hurting. The biggest thing that causes me pain, is shaking hands. People insist on shaking hands because it is the norm in the US. But frequently people shake my hand and hurt me and don't even understand that they do it.
The other thing that can really hurt is when some people hug me. They hug me too tight and it hurts.
Today, I am having a flare. When I have a flare, my joints swell and hurt. Sometimes, its pretty much all over, sometimes it is just one or two areas. Today, I am having a localized flare in just my hands and feet. My hands are so swollen that I cannot make a fist today. My fingers are so swollen I cannot wear my ring. It hurts when I try to make a fist.
My ankles are swollen and my toes hurt really bad. For probably about a month now, I haven't been able to bend the big toe on my right foot all the way.
Even when I am not having a flare, I still have pain from RA. Some people do not understand that I am hurting. The biggest thing that causes me pain, is shaking hands. People insist on shaking hands because it is the norm in the US. But frequently people shake my hand and hurt me and don't even understand that they do it.
The other thing that can really hurt is when some people hug me. They hug me too tight and it hurts.
Subscribe to:
Posts (Atom)